Join the National Down Syndrome Society for the Buddy Walk® on Washington
February 24th and 25th, 2010
Government Affairs Committee (GAC) leaders, affiliate leaders in government relations, seasoned self-advocates and others will come together to "walk" right into the offices of their elected officials! Click here to learn more.
Preliminary Conference Schedule:
Wednesday, February 24
2:00 p.m.-4:30 p.m.
Interactive advocacy training to unite and prepare for visits on the Hill
6:30 p.m.-9:30 p.m.
Buddy Walk on Washington Reception and Award Ceremony
Thursday, February 25
8:00 a.m.-9:30 a.m.
Legislative Breakfast on the Hill
9:00 a.m.-5:30 p.m.
Meetings with Elected Officials
To register, call Vanessa Quick at 1-800-221-4602. The fee for registration, which
includes a ticket to the Reception and Award Ceremony, is $25. All registrants will
receive online training, information and resources before the conference to facilitate
preparations for meetings with elected officials.
To arrange your stay, contact the conference hotel, the Washington Plaza Hotel at www.washingtonplazahotel.com or 1-800-424-1140. The hotel is located in close proximity to the offices on Capitol Hill. Please let the reservation agent know you will be attending the Buddy Walk on Washington to receive the special conference rate.
New Advice for Doctors Diagnosing Down Syndrome
The National Down Syndrome Society is dedicated to ensuring that all new and expectant parents around the country receive accurate, up-to-date, and balanced information about Down syndrome when they first learn of the diagnosis. So many new and expectant parents around the country report that the way in which they received the news could certainly have been improved. Further, physicians often lack the training in how to deliver such a sensitive diagnosis.
All new and expectant parents should be receiving the same information in a sensitive manner. To this end, NDSS asked Dr. Brian Skotko, Dr. Priya Kishnani, and Dr. George Capone of its Clinical Advisory Board to assemble a research team of 29 experts around the country to review research from 1960 to present day so that the following questions could be answered: Who is the best person to communicate the news? When is the best time to share the news? Where should the news be delivered? What information should be offered? How should the diagnosis be communicated?
The evidence-based results have now been published in two landmark papers, printed in the medical journals, American Journal of Medical Genetics and Pediatrics.
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NDSS Responds to Rahm Emanuel's Comment As Quoted In The Wall Street Journal.
Our Thoughts And Well Wishes Extend To Our Dear Friend Kevin Pearce
Kevin Pearce, professional snowboader, was injured Dec. 31, 2009 while training in the halfpipe at Park City Mountain Resort.
His family has created a fan page on facebook in his honor. Click here to visit his fan page.
Kevin joined NDSS as the Sports Ambassador in 2009. Kevin is 22 years old and has a brother, David, who is 24, who has Down syndrome. Click here to read more about Kevin Pearce.
The Joseph P. Kennedy, Jr. Foundation
Public Policy Fellowship Program 2010-2011
The Joseph P. Kennedy, Jr. Foundation is seeking exemplary professionals and/or family members of persons with intellectual or developmental disabilities who are currently working or volunteering in the field of inclusive services and supports for people with intellectual and developmental disabilities for an intensive one-year Public Policy Fellowship in Washington, D.C. The purpose of the Fellowship is to prepare both early career and veteran leaders to assume leadership in the public policy arena in their home state and/or nationally. During this one year Fellowship, the successful applicant will learn how federal legislation is initiated, developed, and passed by the Congress, as well as how programs are administered and regulations promulgated by federal agencies. Click here to learn more.
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