The National Down Syndrome Society (NDSS) connects individuals with Down syndrome and their families with researchers, healthcare institutions, industry partners, and other leaders in the field to bring community perspectives into the research process.
We also work directly with researchers and industry partners to strengthen their engagement with and support for the Down syndrome community.
Research is essential to NDSS and informs our work across all areas, helping guide and improve the lives of individuals with Down syndrome. By grounding our work in data, evidence, and the evolving needs of the Down syndrome community, we strengthen our impact and ensure our work is credible and informed by the best available knowledge.
Through our Research Advancement Focus Area, we connect the Down syndrome community with researchers to advance community-informed research, improve health outcomes, and drive systemic change.
