Meet our Staff


Kandi Pickard
President and CEO

Kandi Pickard

Kandi provides vision and leadership, working collaboratively with individuals and organizations to support the entire Down syndrome community. Kandi holds a degree in business administration and brings two decades of experience in operations and effective administration management to her role at NDSS. Kandi’s involvement in the Down syndrome community first began as a local volunteer and advocate after her youngest son, Mason was born with Down syndrome. Ten years later, she leads NDSS with a focus on building community and keeping people with Down syndrome at the center of everything the organization does. Kandi’s vision for the future of NDSS includes resources, programs, and support for individuals with Down syndrome and their families from birth to adulthood, with a special focus on caregiving, public health, and supporting aging adults.

Misty Adams
Manager of Community Events

Misty Adams

Misty supports Buddy Walk® Organizers across the country and the world to create meaningful and successful events that celebrate Down syndrome and raise awareness in local communities. She also oversees the annual NDSS Times Square Video presentation and supports the flagship New York City Buddy Walk®. Prior to joining NDSS, Misty served as president of her local Down syndrome organization. She brings to her role seven years of experience in peer-to-peer fundraising, including as the organizer of her local Buddy Walk®. Misty holds a bachelor’s degree in criminal justice and psychology and a master’s degree in criminal justice from East Tennessee State University.

Abigail Brandon-Livits
Manager of Special Events

Abigail Brandon-Livits

Abby leads efforts to create meaningful mission-focused fundraising, awareness, and engagement events for the Down syndrome community. Utilizing her experience in event planning, fundraising, and corporate development, Abby develops and implements strategies for NDSS’ flagship New York City Buddy Walk®, Annual Gala & Auction, DC Golf Outing, and other events that raise awareness, engage our community, and support NDSS programs. Abby holds a bachelor’s degree in business administration from St. Louis University.

David DeSanctis
Public Outreach Associate

David DeSanctis

David fosters connections with the Down syndrome community and ensures that NDSS supporters feel appreciated. For the past two years, David has used his outgoing personality to build relationships on behalf of NDSS through thank you phone calls and emails, public speaking, social media support, and events like the NDSS Adult Summit, NYC Gala & Auction, and runDisney. Prior to starting at NDSS, David starred in the feature film, “Where Hope Grows.” He continues to be an inspiration for people with Down syndrome around the world.

Bart Devon
Senior Director of Public Policy

Bart Devon

Bart works to protect the civil rights of individuals with Down syndrome by advancing both policy-based and community-focused advocacy initiatives. Bart began his career working with children and families as a classroom teacher and bus driver in both public and private schools. In recent years he has utilized his experience and education to advocate for disability rights at the state and national levels, with a particular focus on education and employment. Originally from Boston, MA, Bart holds a JD and master’s degree in environmental law and policy from Vermont Law School and a master’s degree in education policy and management from Harvard University.

Jamie Dolan
Office Assistant

Jamie Dolan

Jamie prepares information kits about the needs and abilities of people with Down syndrome. Jamie has also had the opportunity to represent NDSS at the United Nations for the 2016 World Down Syndrome Day.

Anna Fedewa
Manager of Public Policy

Anna Fedewa

Anna Fedewa is the Manager of Public Policy for NDSS where she works to connect members of the community to public policy through grassroots initiatives. Anna’s passion for advocacy and disability rights grew from the friendships she made with individuals with Down syndrome and other disabilities as a young child and was further cultivated during her time teaching high school special education and working with her alma mater’s inclusive post-secondary program. Originally from Houston, TX, Anna holds a bachelor’s degree in early childhood-12 special education with a minor in psychology from Texas A&M University and a graduate certificate in nonprofit management from the Bush School of Government and Public Service.

Olivia Fraioli
Manager of Community Relations

Olivia Fraioli

Olivia works with internal and external stakeholders, digitally and in person, to advance brand awareness, enhance effective communication, build strong community relations, and deepen supporters’ connections to NDSS. In her role, Olivia utilizes the strong connections she built with the Down syndrome community while working at several non-profits that support individuals with intellectual and developmental disabilities and their families. Olivia holds a bachelor’s degree in sociology and women’s and gender studies from Rutgers University and is completing a post-graduate certificate in disability studies at the University of Maine. 

Sara Goldberg
Vice President of Strategic Development

Sara Goldberg

Sara leads the organization’s communications, fundraising, events, and brand strategy. Utilizing more than two decades of experience in non-profit experience, Sara collaborates with internal and external stakeholders in developing rewarding and impactful engagement opportunities and giving experiences. She also offers strategic guidance on NDSS efforts to raise awareness, support and engage the Down syndrome community, and advance the work of NDSS. Sara holds a bachelor’s degree in history and women’s studies from Luther College in Decorah, Iowa and a master’s degree in social sciences from the University of Chicago.

Rachel Grimm
Manager of Health Programs, Aging & Caregiving

Rachel Grimm

Rachel develops and implements outreach, education, and advocacy activities pertaining to NDSS’ aging and caregiving programs. Partnering with internal and external stakeholders, she works to expand resources that support our community’s caregivers and help individuals and families navigate adulthood and aging with Down syndrome. For the past three years, Rachel has driven the growth of the NDSS Adult Summit, which provides educational content to hundreds of individuals with Down syndrome, their families, and caregivers each year. Rachel holds a bachelor’s degree in human services from the University of Delaware and is pursuing a master’s degree in public health from The George Washington University in Washington, D.C.

Colleen Hatcher
Chief of Staff

Colleen Hatcher

Colleen has worked since 2016 to strengthen relationships with and among NDSS supporters, community members, families, partners, and affiliate organizations. Colleen works directly with stakeholders to advance brand awareness, foster strong relationships with the Down syndrome community and strengthen connections to NDSS. Colleen has a bachelor’s degree in elementary special education and a master’s degree in elementary special education, severe disabilities from the University of Maryland.

Luke Hickey
Office Assistant

Luke Hickey

As the Office Assistant, Luke aids in the production and distribution of event promotional materials and favors, manages incoming Gala items/packages, provides support to the health team including New York City Buddy Walk®, and other special events. He also assists in the planning, preparation, and presentation of sponsorship and operational logistical meetings.

Emily Ingmire
Office Manager

Emily Ingmire

Emily provides operational support for the D.C. office and staff. Emily started her career as a Kindergarten Aide working with students with disabilities. Her professional experiences include real estate, property management, business development, and financial planning. Originally from Indiana, she holds bachelor’s degrees in journalism and international studies from Indiana University.

Jessica Kuss
Senior Manager of Education Programs

Jessica Kuss

Jessica oversees NDSS’ community-focused education programs and develops high-quality supports and resources for the education and Down syndrome communities. Since 2017, Jessica has been a part of the NDSS team as a consultant and a staff member. During that time, she has supported community events for runners and contributed to resources for our education program and our health and wellness initiatives. A former elementary special education teacher, Jessica holds a bachelor’s degree in K-12 special education and a master’s degree in special education from James Madison University.

Kayla McKeon
Manager of Grassroots Advocacy

Kayla McKeon

Kayla McKeon is the Manager of Grassroots Advocacy for the National Down Syndrome Society (NDSS) where she works to advance legislation beneficial to the Down syndrome community. Kayla gained experience working with Members of Congress as an intern for Congressman John Katko of New York. She was named NDSS Self-Advocate of the Year in 2016 and joined the NDSS staff the following year. As the first registered lobbyist with Down syndrome, Kayla is a spokesperson for NDSS and the Down syndrome community, participating in media and speaking publicly both nationally and internationally. Kayla has an associate degree in general studies from Onondaga Community College.

Michelle Ray
Senior Advisor

Michelle Ray

Michelle oversees the Athlete Ambassador Program, Charity Racing Teams, and other projects.

Margot Rhondeau
Senior Director of Health and Wellness

Margot Rhondeau

Margot leads the creation of resources and programming to improve health and wellness within the Down syndrome community. Margot joined NDSS in 2020, bringing 14 years of experience working in the health space, both internationally and nationally, to overcome barriers to care and increase health services and programs for underserved populations. Margot holds a Bachelor of Science degree in mathematical economics from Wake Forest University and a master’s degree in international economics and development from Johns Hopkins School of Advanced International Studies.

Melissa Robertson
Manager of Development Operations

Melissa Robertson

Melissa Robertson oversees key donor services, finance, and data management functions. Since 2014, Melissa has played a critical role in working with internal and external stakeholders to support our programs and ensure proper stewardship of donor dollars. Melissa holds a degree in media from Webster University in St. Louis, MO.

Ryan Rotundo
Manager of Employment Programs

Ryan Rotundo

Ryan develops resources, programs, and partnerships to advance employment opportunities for individuals with Down syndrome. Ryan brings more than a decade of experience as a high school special education teacher, with a focus on preparing young adults for positive post-secondary transitions. He also has experience developing curricula to support siblings of individuals with Down syndrome, has worked as a Direct Service Provider, and continues to share his experience as a guest lecturer and speaker. In 2018 Ryan was appointed by Governor Roy Cooper to the North Carolina Council on Developmental Disabilities, and in 2019 he was awarded the Distinguished Service Award by Buncombe County Schools, in partnership with Arc of Buncombe County. Ryan holds an undergraduate degree in special education from UNC – Greensboro and a master’s degree in public administration from UNC-Chapel Hill.

Michelle Sagan
Senior Manager of Communcations

Michelle Sagan

Michelle develops and implements communications strategies to raise awareness and engage audiences with the work of NDSS. Earlier in her career, Michelle built strong relationships within the Down syndrome community as manager of the New York City Buddy Walk® and the National Buddy Walk® Program. In her current role, she manages NDSS’ website, social media, email marketing, and media engagement. Michelle holds a bachelor’s degree in public relations and political science from Syracuse University and a certificate in digital marketing from the Digital Marketing Institute and American Marketing Association

Dana Sciullo
Research Associate

Dana Sciullo

Dana engages in outreach, education, and advocacy activities in support of NDSS’ health programs. Dana is a licensed and registered occupational therapist with a background in medical-based pediatric care and a special interest in research and its application to the everyday lives of families and individuals. She believes everyone benefits from having access to the most recent scientific information, especially if it is shared in a way that is easy to understand. Dana holds two degrees from the University of Pittsburgh.

Michelle Viall
Development Coordinator

Michelle Viall

Michelle supports NDSS fundraising events including the National Buddy Walk® Program, Times Square Video, NYC Buddy Walk®, NDSS Gala and Auction, Racing for 3.21, Run for 3.21, and more. Michelle also oversees the NDSS Athlete Ambassador Program, which she has participated in for several years. Prior to joining NDSS, Michelle served on the board of her local Down syndrome organization and helped plan her local Buddy Walk. Michelle has a bachelor’s degree in Athletic Training from Neumann University, a master’s degree in Multicultural Education from Eastern University, and a certification in Physical Education and Health.

Charlotte Woodward
Education Programs Associate

Charlotte Woodward

Charlotte Woodward is the Education Program Associate for the National Down Syndrome Society (NDSS) where she supports the development of education-related resources and educational policy initiatives. Charlotte was born with Down syndrome, as well as a heart condition, and had four open-heart surgeries when she was young. She is one of the very few people born with Down syndrome to receive a life-saving heart transplant, and she regularly shares her story to educate and advocate for others. Charlotte holds an associate degree from Northern Virginia Community College and recently graduated Summa Cum Laude from George Mason University with a bachelor’s degree in sociology with a concentration in inequality and social change.