NDSS' mission is to create a world where individuals with Down syndrome thrive.
Discuss Down Syndrome-associated Alzheimer's Disease
NDSS will be hosting an Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting with the U.S. Food and Drug Administration (FDA) at 10 AM ET on June 2, to discuss Down Syndrome-associated Alzheimer's Disease (DS-AD).
The EL-PFDD meeting will give the FDA and other key decision makers the opportunity to hear directly from patients, their families, caregivers, and patient advocates specifically about the symptoms of DS-AD, the impacts on daily lives, patient experiences with current available treatments, and hopes for future therapies.
2026 NYC Buddy Walk®
Since 1995, the National Down Syndrome Society Buddy Walk® has been the premier advocacy event for Down syndrome in the United States. It is also the world’s most widely recognized public awareness program for the Down syndrome community. The flagship New York City Buddy Walk attracts participants from coast to coast each year. Join NDSS on Saturday, September 12, 2026!