An Overview of Down syndrome
What is Down syndrome? What causes Down syndrome? How is Down syndrome diagnosed? We cover your questions and more in this overview!
A Promising Future Together: A Guide for New and Expectant Parents
An overview of Down syndrome written especially for parents. Includes sections on healthy starts, early intervention therapies, how to find support and care for your family, and what the future holds. *Email info@ndss.org if you are looking to purchase bulk orders.
Prenatal & Newborn Information Pamphlet
NDSS, Global Down Syndrome Foundation and National Down Syndrome Congress have collaborated to co-publish an important resource for expectant and new parents.
Inclusive Education Guidelines
Down Syndrome: Guidelines for Inclusive Education is the first document of its kind in the United States. The document addresses the education settings that support students with Down syndrome, covering the period from early intervention and primary education through secondary and through higher education, with the primary focus being K-12 students.
Primary Care Provider’s (PCPs) Guide to Women’s Health and Down Syndrome
The Primary Care Provider’s (PCPs) Guide to Women’s Health and Down Syndrome is a comprehensive resource designed to educate PCPs about the nuanced healthcare needs of women with Down syndrome and provide strategies to care for this patient population.
Caregiving and Down Syndrome
NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the National Alliance for Caregiving (NAC), released this guidebook to offer information on how to navigate caregiving for an individual with Down syndrome as they age.
Aging and Down Syndrome: A Health & Well-Being Guidebook
NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the Alzheimer’s Association, released the second edition of this guidebook with the intention of providing guidance, education, and support to families and caregivers of older adults with Down syndrome.
Financial Wellness Guide
NDSS is proud to partner with the Voya Cares® program at Voya Financial to provide comprehensive information and solutions to address the unique, and oftentimes fluctuating, financial needs of the disability community. Our Financial Wellness guide for individuals with disabilities, their families and caregivers is available to download below!
Alzheimer’s Disease & Down Syndrome: A Practical Guidebook for Caregivers
NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices and the Alzheimer’s Association, released a guidebook specifically for those caring for an individual with Down syndrome diagnosed with Alzheimer’s disease. NDSS is here for caregivers every step of the way by also providing resources about Alzheimer’s disease gathered into one collective guide. *Please email info@ndss.org if you are looking to purchase bulk orders.
End-Of-Life and Down Syndrome, A Companion Guidebook to Aging and Down Syndrome: A Health and Well-Being Guidebook
NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) and the Alzheimer’s Association, released this guidebook with the aim to provide guidance for the crossroads and decisions that arise in late life and at the end of life. *Please email info@ndss.org if you are looking to purchase bulk orders.
NDSS Coloring Book
Eleven artists with Down syndrome from across the country share what they are dreaming about, everything from NYC to pizza, flowers to cake, in this EXCLUSIVE coloring book!
Download the coloring book today and share your pictures with us! A special thank you to the French family and all of the artists for sharing their work.
Check out this webinar highlighting a variety of our resources and publications here.
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