Publications

Three girls hugging

Financial Wellness Guide

NDSS is proud to partner with the Voya Cares® program at Voya Financial to provide comprehensive information and solutions to address the unique, and oftentimes fluctuating, financial needs of the disability community. Our Financial Wellness guide for individuals with disabilities, their families and caregivers is available to download below!

Learn more about the Guide in our video series here. 

Download the Financial Wellness Guide


An Overview of Down syndrome

What is Down syndrome? What causes Down syndrome? How is Down syndrome diagnosed? We cover your questions and more in this overview!


Aging and Down Syndrome: A Health & Well-Being Guidebook

A resource for families, professionals, direct caregivers, or anyone concerned with the general welfare of an adult with Down syndrome with a specific focus on aging and health-related matters in an individual with Down syndrome such as:

  • Common medical conditions
  • Alzheimer’s and Down syndrome
  • Mental health

A Promising Future Together: A Guide for New and Expectant Parents

A comprehensive overview of Down syndrome written especially for parents, this booklet includes sections on healthy starts, early intervention therapies, how to find support and care for your family and what the future holds for your child.

Additionally, this has been translated into three additional languages: Russian, Simplified Chinese and Vietnamese.

*Please email Colleen Hatcher at chatcher@ndss.org if you are looking to purchase bulk orders.


Alzheimer’s Disease & Down Syndrome: A Practical Guidebook for Caregivers

NDSS, in partnership with The National Task Group on Intellectual Disabilities and Dementia Practices and the Alzheimer’s Association, released a guidebook specifically for those caring for an individual with Down syndrome diagnosed with Alzheimer’s disease. NDSS is here for caregivers every step of the way by also providing resources about Alzheimer’s disease gathered into one collective guide. Looking to order multiple? Create a login and access here.

*Please email Rachel Grimm rgrimm@ndss.org if you are looking to purchase bulk orders.


Prenatal Testing & Information

NDSS, Global Down Syndrome Foundation and National Down Syndrome Congress have collaborated to co-publish an important resource for expectant and new parents.


Inclusive Education Guidelines

Down Syndrome: Guidelines for Inclusive Education is the first document of its kind in the United States. The document addresses the education settings that support students with Down syndrome, covering the period from early intervention and primary education through secondary and through higher education, with the primary focus being K-12 students.


NDSS Coloring Book

Eleven artists with Down syndrome from across the country share what they are dreaming about, everything from NYC to pizza, flowers to cake, in this EXCLUSIVE coloring book!

Download the coloring book today and share your pictures with us! A special thank you to the French family and all of the artists for sharing their work.